HCRN’s Paul Gross and Dr. Tamara Simon Speak on NIH Panel
HCRN Co-founder Paul Gross and HCRN Principal Investigator Tamara Simon M.D., presented at a nonprofit forum at the National Library of Medicine in Bethesda, MD this week. The National Institute of Neurological Disorders and Stroke (NINDS) held its 10th annual Nonprofit Forum starting on Tuesday, September 13, 2016. Gross has been part of the organizing committee for the last five years for this two-day event intended to create deeper partnerships among NINDS leadership, staff and the nonprofit disease community focused on neurological conditions. Gross is seen here speaking about two technology topics he is passionate about â€“ creating patient registries from electronic medical records and global unique identifiers. He moderated a panel entitled â€œData Integration and Data Management: Challenges and Opportunitiesâ€ with experts on the panel from the National Institute of Mental Health, Harvard Medical School and the Seattle Childrenâ€™s Research Institute.
Gross recruited Dr. Simon to talk about her experience leveraging large scale multi-hospital databases to learn more about the burden of hydrocephalus in the pediatric population as part of the panel. Dr. Simon was able to highlight the value of the data bases already available to the nonprofits to further their disease research.