• John Kestle MD, MSc, FRCSC, FACS
  Chief of Pediatric Neurosurgery at Primary Childrens Medical Center, Professor, University of Utah, Salt Lake City
  Oversees comprehensive hydrocephalus research program including clinical and laboratory research
  PI on International multi-center hydrocephalus clinical trials
  Member Hydrocephalus Association Medical Advisory Board
  

James Drake, BSE, MB, PhD, BCh, MSc, FRCSC
Founder of the Hydrocephalus Research Laboratory at the Hospital for Sick Children, Toronto, Canada.
Professor, University of Toronto
Co-author of The Shunt Book
62 papers published on hydrocephalus
Performs 150 neurosurgeries per year, 50 of which are for patients with hydrocephalus issues

Thomas G. Luerssen MD
Chief of Pediatric Neurosurgery, Texas Childrens Hospital, Houston, Texas
Professor of Neurosurgery, Baylor College of Medicine
President, Am. Soc. Of Pediatric Neurosurgery 04-06

W. Jerry Oakes, MD
Professor and Chief, Pediatric Neurosurgery of Childrens Hospital of Alabama
and University of Alabama at Birmingham Surgeon-in-Chief of Childrens Hospital of Alabama
Performs over 100 hydrocephalus neurosurgeries yearly
17 papers published on hydrocephalus

Marion L. Walker MD
Primary Childrens Medical Center, SLC
Co-Chair, NIH Symposium: Hydrocephalus: Myths, New Paths, Clear Directions. Over 17 papers published on hydrocephalus.
Performs over 300 neurosurgeries including 140 hydrocephalus procedures/year.
Chair of the Medical Advisory Board of the Hydrocephalus Association.
Member of the Board of Directors of the Brain Child Foundation.

Abhaya Kulkarni MD, PhD, FRCSC
Hospital for Sick Children, Toronto, Canada
PhD in clinical epidemiology leading to first validated outcome measure for hydrocephalus
22 papers published on hydrocephalus
Performs 60 hydrocephalus neurosurgeries yearly

Jay Riva-Cambrin MD, BSc, FRCSC, MSc
Masters in clinical epidemiology
Developed model which predicts hydrocephalus in pediatric tumor patients
Performs over 250 neurosurgeries per year
Performs over 100 hydrocephalus surgeries per year

Tamara Simon, MD, MSPH
University of Utah/ Primary Childrens Medical Center

Assistant Professor, Department of Pediatrics
MSPH in health services/clinical research

John C. Wellons, MD
University of Alabama Birmingham Hospital,
Associate Professor of Neurosurgery, University of Alabama-Birmingham
15 papers published on hydrocephalus
Performs 225 neurosurgeries per year
Performs over 80 hydrocephalus neurosurgeries yearly

William E. Whitehead MD, MPH
Texas Childrens Hospital, Houston, Texas
Assistant Professor, Baylor College of Medicine
MPH coursework in hydrocephalus

 

Clinical Research Site Coordinators

 

Tracey Bach, Primary Childrens
Sheila Nguyen, MPH, Texas Childrens
Lindsay O'Connor, MSc, SickKids
Chevis Shannon, MBA, MPH, Children's of Alabama

 

Data Coordinating Center Staff

 

Marcie Langley, Data Center Coordinator
Rich Holubkov, Ph.D., Biostatistician
Jeffery Yearley, Clinical Data Manager

 

Advisory Board

 

Robert Castlebury, M.D.

Pediatric Hematologist/Oncologist
Former Vice Chairman, Children's Oncology Group
Paul Gross, Co-Founder
CEO, Sampa Corporation
Chairman, Hydrocephalus Association
John Kestle, M.D., Chairman and Co-Founder
Chief of Neurosurgery, Primary Childrens
Dory Kranz
Research Director, Hydrocephalus Association
David McClone, M.D.
Former Chief of Pediatric Neurosurgery,
Chicago Memorial Hospital
John Smith, MBA, Co-Founder
Principal, Social Market Strategies