New HCRN Study Up and Running

The HCRN has successfully launched a new, potentially ground-breaking study across the Network. This study, titled Ventricular Involvement in Neuropsychological Outcomes in Pediatric Hydrocephalus, or VINOH for short, is funded by a Mentored Young Investigator award from the Hydrocephalus Association received by Dr. Jay Riva-Cambrin at Primary Children’s Medical Center in Salt Lake City, Utah. This study is looking into the short term implications hydrocephalus may have for school-aged patients concerning school performance, cognitive functioning, and social well-being. In addition, this study will be addressing the very important question of if and to what extent ventricle size impacts both, neuropsychological and clinical outcomes. Another exciting aspect of the VINOH study is the collaboration it has initiated across all HCRN Centers between the neurosurgical and neuropsychological staff, who are instrumental in the VINOH Study’s success. It is hoped that the collaboration begun between the care providers from these two different departments may continue in the future and serve to further improve outcomes for hydrocephalus patients. Congratulations to the Primary Children’s Team in getting this study going for the Network and hydrocephalus patients!


  1. Congratulations to Dr. Riva-Cambrin! We thank you for taking so much interest in this and hope you have good results from such a needed study. The Primary Children’s team is the best!!

  2. Dear HCRN,
    Thank you so much for posting this new study…. it is an amazing discovery, and one I have been waiting for many years. As a 31 year-old patient with obstructive hydrocephalus, I always suspected that the malfunctions I endured would have an effect on me, and my last one in 1992 was no exception. I am relieved that science has finally paid this problem full attention, and I anticipate the day when these consequences, and my shunt, becomes a thing of the past….

    Odette B.

  3. Hopefully this study can find effective treatments to hydrocephalus. This has been a neglected issue for too long. Best of luck!

    Carley S.

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