Our Team 

Chair

John Kestle, MD, MSc, FRCSC, FACS

Principal Investigators

Clinical Research Site Coordinators

Ruksana Rashid
Alberta Children’s Hospital

Stephen Gannon
Monroe Carell Jr. Children’s Hospital

Diego Morales
St. Louis Children’s Hospital

Nicholas Reinhold
St. Louis Children’s Hospital

Hannah Johnson
Nationwide Children’s Hospital

Jared Haught
Nationwide Children’s Hospital

Allison Ludwick
Primary Children’s Hospital

Joan Yea
The Johns Hopkins Hospital

Kimberly Diamond
Children’s Hospital of Pittsburgh of UPMC

Susan Staulcup
Children’s Hospital of Colorado

Hope Willis
Seattle Children’s Hospital

Rosita Thiessen
Seattle Children’s Hospital

Annika Weir
BC Children’s Hospital

Homa Ashrafpour
Hospital for Sick Children

Naghmeh Emami
Hospital for Sick Children

Anastasia Smith
Children’s of Alabama

Tori Holland
Children’s of Alabama

Edgardo Santisbon
Texas Children’s Hospital

Helen Berroya
Children’s Hospital of Los Angeles

Co-Founder and Executive Committee (Emeritus Members/Co-Founders)

  • Paul H. Gross

    HCRN Marketing, Finance and Fundraising, Former Board Chair, Hydrocephalus Association, Former Advisor, National Insitute of Neurological Disorders and Stroke Council

  • James Drake, BSE, MB, PhD, BCh, MSc, FRCSC

    Chief of Neurosurgery and Professor of Surgery, Harold J Hoffman/Shoppers Drug Mart Chair; Division of Neurosurgery, University of Toronto and Hospital for Sick Children, Toronto, Canada

  • Thomas G. Luerssen, MD

    Professor of Neurosurgery, Chief of Pediatric Neurosurgery, Baylor College of Medicine; Pediatric Neurosurgeon, Chief Quality Officer, Surgery, Texas Children’s Hospital, Houston, Texas

  • W. Jerry Oakes, MD

    Professor of Pediatric Neurosurgery, Chief of Pediatric Neurosurgery, The Children’s Hospital of Alabama, Professor of Neurosurgery and Pediatrics, University of Alabama School of Medicine, Birmingham, Alabama

Data Coordinating Center Staff

Richard Holubkov, PhD
DCC Principal Investigator
Biostatistician

Volker Freimann
Clinical Data Manager

Ron W. Reeder, PhD
Biostatistician

Hailey Jensen, MStat
Biostatistician

Project Management Team

Nichol Nunn, MBA
HCRN Clinical Research Manager

Marcie Langley
Project Manager

Jason Clawson
Project Manager